Growing up in Colorado, I have two "great day" memories. The first of course, is Thanksgiving. Since I can remember it's been on of my favorite holiday. Firstly, it's the great story of starving, ignorant Pilgrims who without the help of loving and kind Native Americans would have possibly perished through the winter. But together, they gathered, shared knowledge, and most importantly food.
I, can relate. I Love hosting and eating dinner! In my opinion, this is what makes us the family of man. We get together as often as we can as a group and share laughs, friendship and food! It's a tradition I rely on and hope lasts for generations after we are gone.
My second great day memory is ....Snow Days! When you are a kid, you don't watch the news, you just wake up in the morning, look out the window, and behold! Mother nature has caused a morning of armegeddon! The three greatest words in a winter kids day, " Littleton school district is closed!"
I would have a great day at home, watching the snow and wind. Hoping it never stops! A bonus day to enjoy time, music and generally relaxing! What a great day to remember.
Today we had an appointment with the Radiologist. The reason for this meeting is a little upsetting. I had an MRI last Friday and lo and behold, my little dragon has once again made a return.This ... is a bummer. When you get the infusion you hope it's going to buy you time, long time. You hope maybe things will stay at bay for a year, a year and a half but nope. Time for a change up.
The thing that was so unreal was the joy of watching my daughter, Heather, rally to get another edge. She and My other daughter , Jenae, decided we needed to get another option. Heather contacted the trials group at Duke university. Heather took charge and overnighted our scans and medical history to Duke. Her optimism and enthusiasm made we well up inside. She spoke with the Radiologist with ease and had my back all through the appointment. Then we went to lunch and ate fish and chips and laughed and talked in my work truck , just like we've done so many times through the years as a Father and Daughter. It made me feel so good to listen to her chat and laugh, and reminded me how blessed I am to have caring Family and friends around us.
This GBM is whelming. It's an exhaustive , roller coaster of wins and losses. I am very tired, not just procedurally, but emotionally. Time frames like "6 months, 2 months, a year become very real and will make your mind race. But thanks to my Daughters positiveness, energy, and youthfulness, I have a little blessing and a warmer heart. It made me feel, if only for a little while, like I woke up to a day very familiar to a young boys best memories, a snow day in rainy Seattle.
I don't know if we will qualify for the clinical, I am hoping we will. But for a few hours, I enjoyed the best feeling ever, that I have a caring and loving family. We will fight to stay together as long as we have breath.
I hope you are all well, I hope you all hug each other often and make as many memories as you can. I will try to write again soon.
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